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Discretionary Grant Information System

Abstracts Details

Family Professional Partnership/CSHCN - Fiscal Year 2012

MCHB Program Family to Family Health Information Centers
Program Description View
Grant Number H84MC07942 
Type of Service(s) Enabling Services, Infrastructure Building Services 
Project Period 6/1/2007 to 5/31/2018 
Grantee Raising Special Kids 
Project Director Vickie C French 
Address E Washington St , E Washington St  
Phone 602-242-4366 Ext.207 
Fax 602-242-4306 
Email joycem@raisingspecialkids.org;vickief@raisingspeci 
Website http://www.raisingspecialkids.org 
Project Service Focus Urban/Central City, Suburban, Metropolitan Area (city & suburbs), Rural, Border (US-Mexico) 
Project Scope State-wide 
Grantee Organization Type Other  
Project Infrastructure Focus Policies And Programs Study And Analysis, Translation Of Data And Information For Different Audiences, Dissemination Of Information And Resources, Technical Assistance, Training, Systems Development 
Products and Publications Prods/pubs
Budget Data MCHB Award Amount FY 2012: $95,700
Matching/Other Funds FY 2012: $0

Project Abstracts by Application Year: 2007 | 2008 | 2009 | 2010 | Project Period Final - 2010 | 2011 | 2012 | 2013 | 2014 | Project Period Final - 2014 | 2015 | 2016 | 2017

ABSTRACT
Problem Expands AZ F2F HIC's capacity to assist CSHCH families access to healthcare services & supports. Many families find current systems difficult to navigate. Also works with state agencies, providers & community partners to advance family involvement, family-centered care and medical home principles. 
Goals and Objectives Goal 1: Assist Families with Health Care Information
  • Objective 1: NICU Family Outreach and Manuals and mentoring provided to parents through collaboration with hospitals and other community organizations.
  • Objective 2: Community Outreach activities for families of diverse language and culture provided by cultural brokers
  • Objective 3: Training and Information on collaborative strategies for early intervention/therapy including tribal lands, rural and underserved areas
Goal 2: Provide Peer Support and Individual Assistance
  • Objective 1: Parent to Parent Matching and Support
  • Objective 2: Individual Consultation to assist families of CSHCN to make informed choices about health care; promote good treatment decisions, cost effectiveness, & improved health outcomes
  • Objective 3: Present individual and small group assistance/training for parents on Organizing Your Records; Medical Home; Working with Professionals.
Goal 3: Education and Training for Health Professionals
  • Objective 1: Updated information for physicians in pediatrics and family practice medicine
  • Objective 2: Updated information for medical, dental, nursing students
  • Objective 3: Community outreach for health professionals, school nurses, community health centers and other appropriate entities to promote referrals to the F2F HIC
Goal 4: Transition Information and Education for Parents and Youth
  • Objective 1: Provide training and health transition issues to adult systems/services for 30 parents and youth
  • Objective 2: Presenter on Health Transition at annual statewide Transition Conference
  • Objective 3: Conduct outreach activities on health transition issues for underserved youth and youth of diverse language and culture
Goal 5: Technical Assistance on Family-centered Services at Systems Level
  • Objective 1: Quarterly meetings for F2F with Title V program; Arizona medicaid Program/AHCCCS
  • Objective 2: Parent Leadership Development opportunities at systems level of decision-making
  • Objective 3:
Activities/Methodology undertaken to meet project goals 1) Provide 25 parents each with information on EI, ACA, community & state resources, peer support, Medical Home. 2) 250 families of diverse language/culture and on tribal lands each year have health care information, ACA and state/community resources provided by cultural brokers 3) Yearly: 4 statewide newsletters print/electronic circulation; 52 electronic Monday Memo e-news, maintain Health Care webpage; 125 parents training/information about services for CSHCN, communication/collaboration; annual conference collaborative strategies for EI, 4 workshops in rural/underserved/tribal lands 4) 30 parents each year receive peer support, information on child's health needs and services 5) 40 parents each year receive individual consultations on navigating systems and obtaining appropriate services 6) 30 families each year receive an organizer and training for managing child health records/forms 7) 50 physicians will have updated health information, Medical Home, ACA, family centered care, youth transition; cultural issues, state services for CSHCN 8) Provide information on CSHCN, 504 Plans, emergency preparedness through community outreach for health professionals, school nurses, community health centers and other appropriate entities.
 
The Healthy People 2010 Objective(s)
  • Related to Objective 16.23. Increase the proportion of Territories and States that have service systems for Children with Special Health Care Needs to 100 percent.
  • MICH-30: Increase the proportion of children, including those with special health care needs who have access to a medical home
  • MICH-31: Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, coordinated systems
  • Related to Objective 16.23: Increase the proportion of States and jurisdictions that have service systems for children with or at risk for chronic and disabling conditions as required by Public Law 101-239.
  • PHI-1: Increase the proportion of Federal, Tribal, State and local public health agencies that incorporate Core Competencies for Public Health Professionals into job descriptions and performance evaluation
  • Related to Objective 23.11 (Developmental) Increase the proportion of State and local public health agencies that meet national performance standards for essential public health services.
  • PHI -3: Increase the proportion of Council on Education for Public Health (CEPH) accredited schools of public health, CEPH accredited academic programs, and schools of nursing (with a public health or community health component) that integrate Core Competencies for Public Health Professionals into curricula
  • Related to Objective 23.15 (Developmental) Increase the proportion of Federal, Tribal, State, and local jurisdictions that review and evaluate the extent to which their statutes, ordinances, and bylaws assure the delivery of essential public health services.
  • PH-5: (Developmental) Increase the proportion of 4-year colleges and universities that offer public health or related majors and/or minors which are consistent with the core competencies for undergraduate public health education
  • MICH-31:Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, coordinated systems
  • PHI-15: Increase the proportion of Tribal, State, and local public health agencies that have implemented a health improvement plan and increase the proportion of local health jurisdictions that have implemented a health improvement plan linked with their State plan
  • Related to Objective 16.23: Increase the proportion of States and jurisdictions that have service systems for children with or at risk for chronic and disabling conditions as required by Public Law 101-239.
  • MICH-31: Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, coordinated systems
  • PHI-15: Increase the proportion of Tribal, State, and local public health agencies that have implemented a health improvement plan and increase the proportion of local health jurisdictions that have implemented a health improvement plan linked with their State plan
  • MICH-30: Increase the proportion of children, including those with special health care needs who have access to a medical home
 
Coordination Arizona Department of Health Services, Office of Children with Special Health Care Needs (OCSHCN) Title V Program; Arizona's Medicaid Program, AHCCCS occur within context of state's severe budget crisis. Easter Seals Southwest Human Development taking NICU manual to families’ homes & referring to F2F HIC. POPSICLE (Parents Organized Partnerships Supporting Infants & Children Learning to Eat) are providing feeding information for NICU Manual & parent mentors to be trained and managed by F2F HIC. 
Evaluation Assess performance, quality, & usefulness of activities performed in 5 goal areas. Performance data & program evaluation data collected by Project Staff & entered into web hosted database Salesforce.com at point of intake/referral, from e-mail inquires, after outreach events, during telephone surveys, from electronic surveys & conference/training evaluations. Activities conducted/presented in Spanish evaluated using translated evaluation forms or by telephone with staff that are bi-lingual. 
Experience to Date Raising Special Kids participated in statewide meetings and facilitated interviews with families in English and Spanish served by the program for Children’s Rehabilitative Services, to facilitate input and collect data on the integration of CRS into Arizona’s Health Care Cost Containment System (Arizona’s Medicaid program). Our Monday Memo, weekly e-mail news keeps parents and professionals informed of federal, state, and local issues, events, and resources for families of CSHCN and those who serve them. Quote from parent of toddler due to an accident that suddenly became medically fragile: “I’ve had so much support from Raising Special Kids…especially our chats when I could hardly talk and you were so understanding and reassuring.” From medical resident after training,
“I would definitely refer patients to RSK, especially after my home visit. I feel they provide a great and perhaps the best support system for families, and offer many valuable resources! At the home visit I was able to see firsthand how much of an impact a child’s diagnosis can have on a family. I also saw a happy child, evidence of a great support system, resources, and a solid knowledge base.”

 
Keywords Adolescents with special health care needs, Children with special health care needs, Family centered health care, Health care providers, Health care systems, Leadership training, Medical home, Parent participation, Parent professional relations, Transitions 
Annual Number of Website Hits 27,640 
Annual Number of Unique Website Visitors  
Annotation Arizona's F2F HIC provides info, training & support to families statewide, connecting them to resources & systems for their CYSHCN. The program Fosters effective partnerships between parents & professionals by promoting understanding of medical home & family-centered, culturally competent care via workshops & tools while creating programs & publications to meet the particular challenges of YSCHN & NICU, rural & underserved families. Also, collaborating with state agencies to incorporate the family voice in their design of policies & programs that serve CYSHCN & families. The program uses a wide variety of education & outreach methods (CDs, website, parent volunteers, etc.) to deliver our info, & similar methods to assess our effectiveness. 




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