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Discretionary Grant Information System

Abstracts Details

Family Professional Partnership/CSHCN - Fiscal Year 2012

MCHB Program Family to Family Health Information Centers
Program Description View
Grant Number H84MC09487 
Type of Service(s) Enabling Services 
Project Period 6/1/2008 to 5/31/2018 
Grantee Families Together, Inc. 
Project Director Tami Allen 
Address SW 37th Street, SW 37th Street 
Phone 620-276-2380 
Fax 620-276-3488 
Email shannon@familiestogetherinc.org;connie@familiestog 
Website Not Available  
Project Service Focus Urban/Central City, Suburban, Metropolitan Area (city & suburbs), Rural 
Project Scope State-wide 
Grantee Organization Type Community-Based Non-Governmental Organization (Non-Health Care) 
Project Infrastructure Focus Dissemination Of Information And Resources, Training 
Products and Publications Prods/pubs
Budget Data MCHB Award Amount FY 2012: $95,700
Matching/Other Funds FY 2012: $0

Project Abstracts by Application Year: 2008 | 2009 | 2010 | Project Period Final - 2010 | 2011 | 2012 | 2013 | 2014 | Project Period Final - 2014 | 2015 | 2016 | 2017

ABSTRACT
Problem The Kansas Family to Family Health Information enter (F2FHIC) has helped families of children and youth with special health care needs (CYSHCN) throughout Kansas. We will continue to increase care within the Medical Home and increase and improve comprehnsive support systems that assist CYSHCN. 
Goals and Objectives Goal 1: Increase the training available to Kansas Families of Children with Special Health Care Needs (CYSHCN)
  • Objective 1: Provide training and information to 100 parents of CYSHCN each year about how to use a “Medical Home”, how to partner with health care providers, and how to impact policy, etc.
  • Objective 2: Provide training and information to 50 parents and YSHCN each year about services necessary to make transition to all medical aspects of adult life, and outreach to 60 families of newly diagnosed CYSHCN each year with special emphasis on early intervention services.
  • Objective 3: Provide a new track of workshops at two statewide conferences each year to specifically address the needs of the target family populations. Provide scholarships to families to attend the statewide conference, national conferences, and regional and local meetings/conferences for specialized training.
Goal 2: Provide information in the Families Together, Inc. quarterly newsletter and website as well as Monday Memo on topics of particular interest to families of CYSHCN.
  • Objective 1: Develop a page on the Families Together, Inc. website expressly for families of Children with Special Health Care Needs.
  • Objective 2:
  • Objective 3:
Goal 3: Promotion of Parent-to-Parent matches to give emotional support to families of Children with Special Health Care Needs
  • Objective 1: Recruit 10 supporting parents each year to be matched to families of CYSHCN
  • Objective 2: Make at least 12 Parent-to-Parent matches each year.
  • Objective 3:
Goal 4: Reach out to the community to promote services of the Kansas F2F to families and professionals
  • Objective 1: Contact 20 medical societies, medical schools, or related service educational programs
  • Objective 2: Promote the Kansas F2F Center to 20 different County Health Departments or Community Health Clinics each year.
  • Objective 3: Cultivate three partnerships with leaders in the Asian and Native American communities to provide culturally appropriate training and services to the families they serve, including at least one new partnership with a culturally
Goal 5: Update and distribute “CareING book” (Care Individual Needs Guide book) to families
  • Objective 1: Families who attend the CYSHCN track at the statewide conferences will each receive a copy of the notebook
  • Objective 2: Parents of CYSHCN who request individual assistance from a PHCS will be offered a CareING book.
  • Objective 3:
Activities/Methodology undertaken to meet project goals The project staff will give emotional support to families and equip them with practical information to address their situations or concerns. THe three part-time staff provided by this grant will offer individual assistance to parents on topics of interest to families of CYSHCN and technical assistance to all staff members at Families Together, Inc. Each family who attends the track of CYSHCN at the agency annual conferences will also receive a CareING notebook with organizational dividers for all the information the need to added meeting with the professionals who serve their child. Families will have access to current information through the F2F page on the Families Together website, a quarterly printed newsletter, and a weekly email newsletter. F2 F staff will recruit new supporting parents who have CYSHCN to encourage and educate other families about systems of care and support. The staff will match families based on any criteria the requesting family wishes. Staff members will contact providers of health care services to families of CYSHCN and provide the clinic or department personnel with brochures about Kansas F2F Center. Staff members will contact medical schools, medical societies, and related services educational programs for info about the Kansas F2F 
The Healthy People 2010 Objective(s)
  • Related to Objective 16.23. Increase the proportion of Territories and States that have service systems for Children with Special Health Care Needs to 100 percent.
  • MICH-30: Increase the proportion of children, including those with special health care needs who have access to a medical home
  • MICH-31: Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, coordinated systems
  • Related to Objective 16.23: Increase the proportion of States and jurisdictions that have service systems for children with or at risk for chronic and disabling conditions as required by Public Law 101-239.
  • PHI-1: Increase the proportion of Federal, Tribal, State and local public health agencies that incorporate Core Competencies for Public Health Professionals into job descriptions and performance evaluation
  • Related to Objective 23.11 (Developmental) Increase the proportion of State and local public health agencies that meet national performance standards for essential public health services.
  • PHI -3: Increase the proportion of Council on Education for Public Health (CEPH) accredited schools of public health, CEPH accredited academic programs, and schools of nursing (with a public health or community health component) that integrate Core Competencies for Public Health Professionals into curricula
  • Related to Objective 23.15 (Developmental) Increase the proportion of Federal, Tribal, State, and local jurisdictions that review and evaluate the extent to which their statutes, ordinances, and bylaws assure the delivery of essential public health services.
  • PH-5: (Developmental) Increase the proportion of 4-year colleges and universities that offer public health or related majors and/or minors which are consistent with the core competencies for undergraduate public health education
  • MICH-31:Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, coordinated systems
  • PHI-15: Increase the proportion of Tribal, State, and local public health agencies that have implemented a health improvement plan and increase the proportion of local health jurisdictions that have implemented a health improvement plan linked with their State plan
  • Related to Objective 16.23: Increase the proportion of States and jurisdictions that have service systems for children with or at risk for chronic and disabling conditions as required by Public Law 101-239.
  • MICH-31: Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, coordinated systems
  • PHI-15: Increase the proportion of Tribal, State, and local public health agencies that have implemented a health improvement plan and increase the proportion of local health jurisdictions that have implemented a health improvement plan linked with their State plan
  • MICH-30: Increase the proportion of children, including those with special health care needs who have access to a medical home
 
Coordination KDHE - CYSHCN, provide infor to families who need services tailored to their son of daughter with special health care needs.
Mexican American Ministries, provide information to families who speak Spanish
University of Kansas Beach Center on Disabilities, info to families, materials for families, research information,
Hunter Heath Clinic - information for clients of CYSHCN
Local Heath Departments - offer training for staff and brochures for persons who need F2F services. 
Evaluation Ongoing evaluation through event evaluation from participants, call-backs on families served, annual satisfaction survey, and external evaluation by Family Voices National. 
Experience to Date A website has been developed for families who have a child with Special Health Care Needs. Links with information for families to use as resources are included. Parent to Parent matches have been made to give emotional support to families who have children with Special Health Care Needs. To date 61 matches have been made. Trainings have been provided to families on topics such as Medical Home, Individualized Health Care Plans, and Transition to Adult Health Care. Two Health Care summits were held to inform families about Health Care resources. These summits were provided in English and Spanish. A quarterly newsletter has been disseminated with information on Health Care issues. Featured articles have been Medical Home, Affordable Care Act, Health Care Transition and updates to Medicaid issues. Partnerships are continuing to be cultivated with cultural agents in the minority population to promote the services through the F2F center. Our CareING notebook continues to be a much needed resource. We are in the process of developing an app as well as making it accessible on our website. 
Keywords Children with special health care needs, Disabilities, Family centered services, Family support, Medical home, Medically fragile children, Transition planning, Underserved populations 
Annual Number of Website Hits  
Annual Number of Unique Website Visitors  
Annotation The primary purpose of this proposed project is to assist children and young adults with chronic illness and disability to enter adulthood healthy and ready to advocate for their needs in the adult medical system from an established medical home. Families and young adults need assistance to navigate complicated systems. F2F Kansas will get information from families about the services they need, respond with materials and training, partner with service providers to reach families, and offer training to pre-service and other service providers from a family perspective. 




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